As you may know, my son is not only plagued with ADHD, OCD, autism and a math learning disability, but also developed epilepsy last year.
Despite medications, his seizures have been constantly increasing.
Monday he entered the hospital for a 2-7 day stay for constantly EEG/video monitoring. Took about an hour for the EEG specialist to hook his head up to all the EEG electrodes and wires, and two for his chest. She left the room to get her special testing equipment, returning within 10 minutes, and set up. She pulled out a pinwheel and asked him to keep it moving by blowing constantly. Before the 3 minutes for the test had passed, a blank look covered his face and he stopped blowing. I rushed over as the EEG specialists pushed a special "EVENT ALERT" button and the nurse call button. He had a tonic-clonic seizure (what used to be called a "grand mal" seizure). The room soon flooded with nurses, techs, a resident and a doctor as my son twisted his body and turned blue.
He'd stopped breathing.
They did get him back, got his color, pulse and oxygen going again but I'll never forget this. See, it was the very first seizure that I'd witness from the very beginning to end. I cried the entire time.
And the doctor, friends and family had had doubts that he had as many seizures as I'd told them. Would on earth would lie about something like this?!?!?!
Over then next 27 hours, he continued to have smaller seizures, right up through (and beyond) his discharge. We left for home early. We got the info we needed.
Diagnosis: part of his brain hadn't developed correctly.
Cure: none.
Remedy: will try more and different medications.
Last Resort: brain surgery.
It's even more important now to get his dog completely trained to not only alert to the symptoms of seizures, but also a special alert for when he turns blue or stops breathing. I can't find a wrist pulse/oxygen monitor that he can wear like a wristwatch (without the finger attachment) so we need the dog trained. Can you help pay for the training? Please? We have a grant through 501(k) charity http://www.chelseahutchisonfoundation.org/ ... but if you could please donate additional funds to them, earmarked for "Weslee Lawrence" only, we'd really appreciate it. We're working with a wonderful dog trainer who has a child with autism and epilepsy herself, so she understands our needs.
Please wish us good moments and healing thoughts.
Thank you.
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p.s. Still need full time RVer to help with chores. Now, more than ever. Read previous posts.
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