My current home doesn't have a verandah or even a porch but I dream of owning a little farmette again, with a verandah overlooking chickens, goats and gardens. Absolute heaven!

Blogs Rearranging

 

After a lot of starts and stops with blogging, I will keep updating only THREE blogs:


Thanks for stopping by. 

Vikki

......

My 28 year old (but mentally and emotionally is about 12) son, Weslee, has intractable epilepsy, autism, OCD, ADHD and lots of side effects from lots of brain surgeries. After a week stay at the Cleveland Clinic in 2024, his team of doctors is suggesting more brain surgeries. We need help to get there and back plus with copays, etc.  Please donate through the link below then share this link: https://gofund.me/085ca903 ..

...OR...

To donate directly through PayPal :
Click here to go to:

Thank you.

at No comments:
Labels: , , , ,

CHANGE IN OUR HOME

It's just me, Hubby of 5 years, and 16 year old Kid.  Three weeks or so ago, my son's epilepsy got worse. Grand mal/tonic clonic seizures increased to about 7-8 a week. He started regressing in maturity. Had to be pulled out of school after a big seizure there scared the teachers silly so no school for the rest of the year.

Finally have our diagnosis tho. PET/CAT/EEG on Mon Dec 3 showed the neurons in the right frontal lobe didn't form correctly in utero, plus he has lesions and a small tumor. Can't do much until seizures are under control so meds were upped, which did help (as shown on yesterday's EEG) but furthered his regression and also probably caused an odd-pattern swelling on his scalp. Decreased 1 med last night and will again tonight then will stop unless seizures come back. Am to keep a close eye on swelling.

SUDEP (sudden death in epilepsy) is a real possibility.

Meanwhile, we're trying to find ways to make more money because his medical bills are mounting. Inpatient hospital stays and surgery are expected next year.

Please keep us in your thoughts.
at No comments:

TIME FOR A PAUSE

It's a little bit cool today ... 70's. Would like to really sit out and enjoy it but so much is going on. My kid's seizures are not getting any better so upping the seizure meds is just increasing his aggression. Thankfully we have a doc appt early this week for the aggression, and one later in the week for his epilepsy.

But Hubby has a medical problem. He can't really walk right now, and with my kid's aggression, I can't trust him to help, so it's just me and me alone doing all the chores with the goats, chickens, and dog. And housework, making cheese, checking schoolwork, assigning homeschool-work, and so on and so on and so on ... it's 100% me. ARGH.

So, as much as I'd love to have time for a pause, plan our "make-it-snow" party, smell the autumn air, and relax, it's not possible.
at No comments:

Making it Snow (or just generally give us a good soaking)

Even with our minimal time available, increase in my son's seizures, problems with schooling ... we're still going to do something on Saturday, October 13 2012 to make it snow! We (most of the USA) so desperately need the moisture, with wells and cisterns and reservoirs going dry, and old trees gasping for even the tinest drink.

What are YOU going to do on October 13 to make it snow (or rain)?
at No comments:
Subscribe to: Posts (Atom)